E’SSUUBI

« E’SSUUBI » is a project about hope, an on going close collaboration with SHAU (Spina Bifida & Hydrocephalus association in Uganda)

Everyday Ugandan youths with Spina Bifida and Hydrocephalus strive to gain their undeniable rights and values in their society. «E’ssubbi» is a photographic documenting work resulting of a close collaboration with SHAU (Spina Bifida, Hydrocephalus Association). Through these images, the aim is to highlight an issue that severely affects Ugandan population and against which, SHAU has been intensely fighting since their creation in 2016. Moreover, finding photography as a medium to, I hope, push forward inclusivity.

Together with the residents and members of the association, we wish to assert their presence in an effort to break what was considered a taboo 25 years ago. «E’ssubbi» demonstrates the pride and resilience of people who experience and have experienced the challenges associated with Spina bifida and Hydrocephalus.

It’s an attempt in which photography serves as a conduit for the most accurate and comprehensive representation of the word ‘hope’.

A massive thank you to
KASK Conservatorium for the support & Sofie Taboureau from STUVO for her trust and financial help
Members of the SHAU association:
Ruth Nalugya
Benjamin Kawuma
Winfred Nabikolo
Isaac & Felix
Ashraf, Joseph, Moskey Dora …
Child’s help coordinator: Mieke Van Poucke
& President : Pierre Mertens
Of course a huge thank you to Mathieu Paternoster from Laboriver for the sponsorship & his support / advices too

I also want to thank my mentor Nick Hannes for his precious advices all through this process
Without forgetting Ives Maes & Marie Snauwaert for their involvement during the several meetings

thank you to everyone who made this project possible.


MORE INFO : https://www.shauganda.org/ or https://child-help.be/fr/